lottery winners gain £400k funding
University research projects looking at the difficulties
faced by people with sight loss, and by those with chronic
blood disorders, have been awarded over £400,000
funding by the National Lottery Charities Board.
£250,000 will fund a team to look at how young people
and adults cope with sickle cell and thalassaemia, conditions
affecting the body's red blood cells. Sickle cell is the
most common genetic condition in the UK, with around 15,000
cases, and around 700 people have thalassaemia, yet there
is little research into their impact on the ethnic groups
these conditions mainly affect.
leader Dr Karl Atkin (pictured above with co-researchers
l-r Dr Aliya Darr and Angie Ryan) said:
"Both conditions are potentially life-threatening.
We'll be looking at how living with these chronic illnesses
affects people in all parts of their lives, from employment
and education to marriage, children and friendships."
second project is looking at how the information supplied
with medicines can be made more accessible for people
with sight loss. Working with Bradford Royal Infirmary,
researchers will interview 60 partially sighted people
over 65 about what medicines they take, how they get information
about them, and what provision they would like to see.
leader Dr Peter Knapp explains: "Over 80% of people
with significant visual impairment are over retirement
age, and many take medicines which are unrelated to their
aren't required to provide information in different formats,
but the standard information sheet is unreadable for many
project will look at a range of options, including automated
telephone information and provision in large print.
researchers are pictured above right: (r-l) Dr
Peter Knapp, Helen Bradbury, Dr Karl Atkin and Professor
projects are working with partner organisations in the
charitable sector, the Organisation for Sickle Cell Anaemia
Relief, and the Royal National Institute for the Blind.
The research runs for three years.